Nobody should suffer and die of a preventable cancer. Nobody.
Sharing Medical Information with Relatives
If possible, the following family medical information should be collected and shared with close relatives:
-- family members who were diagnosed with cancer
-- age at diagnosis
-- type of cancer, including pathology results, if available
-- genetic test results
to Your Family About Your BRCA1 or BRCA2 Mutation
Learn how to share test results, letters from your doctor or genetic counselor, or other information you received about your mutation with your family. Giving family members information about your specific genetic mutation helps their healthcare providers know exactly which test to use.
How to Share Genetic Test Results With Family
When you share genetic test results about hereditary cancers, your family members need to know at least these 2 important details to share with their health care providers or genetic counselors:
-- The name of the specific gene where the mutation was found, like BRCA2
-- The specific mutation in the gene, like 187delAG in BRCA1
Talking to Your Family about Your Lynch Syndrome Diagnosis
Why talk to my family?
Your family members can benefit from knowing about your diagnosis of Lynch syndrome. Talk to your family members about Lynch syndrome, and tell them Lynch syndrome is passed through families... Read more...
in the Family: The Importance of Talking About Hereditary Cancer
The key is communicating information with not just your daughter or son, but also extended family such as an aunt, uncle, niece, nephew or grandchild, according to Megan Myers, M.S., a genetic counselor from the University of California San Francisco (UCSF).
Resources with videos:
Encouraging Family Conversations About Hereditary Breast and Ovarian Cancer - YouTube Video Project
Bring Your Brave: Talking About Your Family History of Cancer
Breast and Ovarian Cancer Syndrome
Hereditary breast and ovarian cancer syndrome is an inherited cancer-predisposition syndrome. Affected individuals have a significantly greater risk of developing certain cancers, particularly breast cancer, in both men and women, and ovarian cancer in women. Many affected individuals tend to develop cancer earlier in life as well, usually before the age of 50.
Short Hereditary Cancer Syndrome Video
Facing Our Risk of Cancer Empowered or FORCE.
FORCE's mission is to improve the lives of individuals and families facing hereditary cancer.
Helping families by providing free education, support and help finding early detection and genetics services.
BRCA Exchange Web Portal
The BRCA Exchange aims to advance our understanding of the genetic basis of breast, ovarian, pancreatic and other cancers by pooling data on BRCA1/2 genetic variants and corresponding clinical data from around the world. Search for BRCA1 or BRCA2 variants above.
Current number of unique BRCA variants in the portal: 68,962
Unique BRCA1 variants in the portal: 34,446
Unique BRCA2 variants in the portal: 34,516
Number of ENIGMA expert-classified variants in the portal: 7,445
Variants expert-classified as pathogenic: 4,900
Variants expert-classified as likely pathogenic: 0
Variants expert-classified as benign: 1,358
Variants expert-classified as likely benign: 1,179
Prevent Cancer Foundation
The mission of the Prevent Cancer Foundation is empowering people to stay ahead of cancer through prevention and early detection.
Take a Stand!
Staying on top of your health is one of the most important calls you can make. Nearly 5,000 people are diagnosed with cancer every day in the US. Routine cancer screenings are incredibly important for early detection, especially for individuals with a family history of cancer.
The American Childhood Cancer Organization
St. Jude's Children's Hospital
Cancer Research Foundation
National Breast Cancer Foundation
G. Komen Foundation
If You’re Dense, You Need to be Smart -- Ted Talk
This site was created by Mark A. Hicks, artist,
illustrator and hereditary cancer awareness and prevention advocate. To learn
more go to his main blog, www.CarefreeArtist.com.